Advocating Dynamic Resources in Autism Neurodiversity

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Advocating dynamic resources in autism neurodiversity

mISSION-vision-values

Mission

Mission

Mission

To build communities _on inclusion

Vision

Mission

Mission

A world without 

Values

Mission

Values

Identity

Dignity

Equity

Humanity


The ADRIAN Network

Our Story

© Alicia Fuclés

My Mom, Alma Fuclés

My mother Alma was the Public Relations and Fundraising Director for Valley of the Sun School and Habilitation Center, (now VALLEYLIFE) a non-profit organization in Phoenix, AZ serving children and adults with developmental disabilities, for nearly 19 years, until the Spring of 2005.  It was not a job for her-it was truly a passion.  She loved the people she served and loved helping them to have the best quality of life they could.  


Alma hosted events, organized volunteers, gave countless United Way presentations as a Loaned Executive, and helped raise millions over her career in the non-profit sector. She was a dynamic public speaker, and a bold agent for human rights-that people with disabilities deserve love, care, dignity, and opportunity...things that all people want for themselves. I began volunteering for Valley when I was in high school.  I remember so many fundraisers and events:  from the courtyard of the main campus at Hatcher Road-to the ballrooms of the Scottsdale Hilton, Pointe at Tapatio Cliffs, Arizona Biltmore, and even the Phoenician.  And the tables at United Way Care Fairs, where she had me handing out brochures and educating people on Valley's mission, and the people their donations benefited.  It was rewarding in ways that are immeasurable, and were truly, some of the best moments of my life. 


I went on to be a job coach for Valley for 3 years, helping to open a thrift shop benefiting the school and employing their clients.  I continued to volunteer throughout the years, side by side with my mom, supporting the agency, and always mindful of Valley's mission.  But for all the exciting times, the most memorable and cherished are the friendships that I made, and the lives that I was touched by, and hopefully, touched.  You learn to celebrate life, never take anything for granted, and discover that there are no small victories!  You learn to see the world through others' eyes; and the view is uniquely beautiful.  And while I had a lot to learn after my son's diagnosis, I was no stranger to the world of disabilities.  And I consider this a real blessing.  


This all informed my decision to create The ADRIAN Network.  


My mother's history...and my son's future.  We may be just a blog, but The ADRIAN Network hopes to be a source of encouragement, empowerment, and inspiration for families to pursue not only evidence-based, industry standard therapies and services, but also, to think outside the box about what they can do to help their child, even an adult child, to grow, thrive, live and love in this world. And, most importantly-to never give up!


Sadly, my mother passed away from cancer in 2017, leaving me and her grandson Adrian devastated. She was Adrian's 'Granny'-his champion and cheerleader too, taking him to therapies and activities over the years, The Phoenix Art Museum (their favorite hangout) and providing me with unwavering support as I advocated for my son. When I would become overwhelmed by it all, or come up against (seemingly) impossible obstacles, she would remind me to take each day as it comes, saying:  "He WILL develop; he WILL grow; he WILL communicate, he WILL mature, and he WILL do these things when he's ready. This is not a race! Autism is not something we need to 'fix'-he is not broken. He is not missing any pieces. He is a WHOLE person. Give him a chance to 'come into his own.' He's beautiful, he's capable-and he's OURS. And I wouldn't trade him for the world!" And she was so, so very right. He exceeds my expectations everyday.  I'm so very proud of him! As she always was.  We had such an amazing life together, as a family; it was a dream life, even with all its challenges, and we miss her desperately.  


Her legacy of love, inclusion, and dignity lives on in us, and empowers us everyday to live life to the full, put ourselves out there, and be grateful ALWAYS-for everything we have, and everything we are. We are not lacking in any way. God has given us everything we need. Let's make the most of our exceptional gifts, and help one another do the same.


We love you Granny! You will ALWAYS be our Hero!

Adrian with his Granny, 2014

She always said she loved him more than she loved me lol ☺

Me with My Mom, in the 90's

My best friend, forever ♥

Making Noise for Autism Walk: Presented By Sounds of Autism

On Sunday, November 14, 2021...We Made Some Noise for Autism! 

We had a blast, and Adrian gave the Walk two thumbs up :)

Sounds of Autism, a 501(c)(3) non-profit organization serving the Autism community, kicked off their inaugural Making Noise for Autism Walk at the beautiful Rio Vista Community Park in Peoria. The grounds were bustling with families, vendors, music-and Marvel Comics-with Spiderman and Captain America making a special appearance. After a touching Invocation, Cricket Barrientos, Founder of Sounds of Autism, dedicated the walk to Mikael, an Autistic youth who recently passed away, reminding us all why in numbers, and it felt great to come together as Autism families.  After completing the course, Hillbilly Grind and Cerealphoria were on hand for some refreshment. (I highly recommend the Blue Raspberry Lemonade.) awareness and advocacy is so very important. 


We proceeded to the ribbon cutting, and the walk began! The trail was flanked by lush desert landscape, the air was crisp, and the unity was clear:  there's strength 


Congratulations to Sounds of Autism for an Au-some event! Thank you for all you do for the Autism  Community. If you'd like more information on this organization, go to our Directory and click on their link under "Resources We Love".


We'll see you next year! 


 Enjoy some highlights we captured in the Gallery below.

MAKING NOISE FOR AUTISM WALK: PRESENTED BY SOUNDS OF AUTISM

 On Sunday, November 14, 2021...We Made Some Noise for Autism! 


Sounds of Autism, a 501(c)(3) non-profit organization serving the Autism community, kicked off their inaugural Making Noise for Autism Walk at the beautiful Rio Vista Community Park in Peoria. The grounds were bustling with families, vendors, music-and Marvel Comics-with Spiderman and Captain America making a special appearance. After a touching Invocation, Cricket Barrientos, Founder of Sounds of Autism, dedicated the walk to Mikael, an Autistic youth who recently passed away, reminding us all why awareness and advocacy is so very important. 


We proceeded to the ribbon cutting, and the walk began! The trail was flanked by lush desert landscape, the air was crisp, and the unity was clear:  there's strength in numbers, and it felt great to come together as Autism families.  After completing the course, Hillbilly Grind and Cerealphoria were on hand for some refreshment. (I highly recommend the Blue Raspberry Lemonade.) We had a blast, and Adrian gave the Walk two thumbs up :)


Congratulations to Sounds of Autism for an Au-some event! Thank you for all you do for the Autism  Community.
We'll see you next year! 


Enjoy some highlights we captured in the Gallery below. 


The ADRIAN Network

Making Noise for Autism WAlk 2021

    Our Perspective

    Identity-First Language

    We prefer Identity-first language over Person-first language at The ADRIAN Network. That means we'll mostly say 'Autistic' rather than 'person with Autism', although some blog posts may use the latter. Though often a subject for debate, we take no offense with Person-first language, as we believe it is an individual's choice, and one each Autistic person/person with Autism is entitled to make.

    My Blog

    Advocating Dynamic Resources in Autism Neurodiversity

    Autism Glossary

    ASD-Autism Spectrum Disorder

    IEP-Individualized Education Plan

    IEP-Individualized Education Plan

     Autism Spectrum Disorder (ASD) is a group of developmental disabilities that can cause significant social, communication and behavioral challenges.

    IEP-Individualized Education Plan

    IEP-Individualized Education Plan

    IEP-Individualized Education Plan

    Having a big sale, on-site celebrity, or other event? Be sure to announce it so everybody knows and gets excited about it.

    ISP-Individual Service Plan

    IEP-Individualized Education Plan

    ISP-Individual Service Plan

    A written report detailing the supports, activities and resources required for an individual to achieve their personal goals.

    Sensory Issues

    Autism Level 1, Level 2, Level 3

    ISP-Individual Service Plan

      Sensory issues often accompany autism. Autism's sensory issues can involve both hyper-sensitivities (over-responsiveness) and hypo-sensitivities (under-responsiveness) to a wide range of stimuli. 

    Stim-Self Stimulating Behavior

    Autism Level 1, Level 2, Level 3

    Autism Level 1, Level 2, Level 3

    Repetitive, stimulating movements or sounds. Examples are: Hand flapping, rocking, or spinning objects.

    Autism Level 1, Level 2, Level 3

    Autism Level 1, Level 2, Level 3

    Autism Level 1, Level 2, Level 3

    The DSM-5 is the most current edition (2013)  of the Diagnostic and Statistical Manual of Mental Disorders.  Their diagnostic criteria determines  the severity of Autism according to support needs. 

    Expressive Language

    Expressive Language

    Expressive Language

    A child's ability to express himself.  Used each time he communicates his needs, thoughts  and ideas using words, phrase and sentences.

    Receptive Language

    Expressive Language

    Expressive Language

    The ability to understand and comprehend spoken language that you hear or read. Being able to follow directions, for example, depends on receptive language.

    Perseveration

    Expressive Language

    Perseveration

    Repetition of a particular response (word, phrase or gesture) regardless of the absence or cessation of the stimulus. Repeating actions or words over and over.

    Asperger's

    ADOS-Autism Diagnostic Observation Schedule

    Perseveration

    As per the DSM-IV, Asperger's was a diagnosis of ASD without language delays or cognitive disability, yet characteristic of difficulties in social interaction and restricted interests. 

    DSM-V (Diagnostic and Statistical Manual

    ADOS-Autism Diagnostic Observation Schedule

    ADOS-Autism Diagnostic Observation Schedule

     A manual published by the American Psychiatric Association (APA) which describes all of the diagnostic criteria and the systematic descriptions of various mental disorders.

    ADOS-Autism Diagnostic Observation Schedule

    ADOS-Autism Diagnostic Observation Schedule

    ADOS-Autism Diagnostic Observation Schedule

     The Autism Diagnostic Observation Schedule (ADOS) generates accurate assessments of autism and development disorders across all ages, language skills, cultural backgrounds and developmental levels. The ADOS is a standardized diagnostic assessment of social, imagination and communication skills of individuals who may have autism spectrum disorder (ASD). 

    Developmental Milestones

    AAC-Augmentative and Alternative Communication Devices

    Developmental Milestones

     Developmental milestones are behaviors or physical skills seen in infants and children as they grow and develop. 

    Functional Play

    AAC-Augmentative and Alternative Communication Devices

    Developmental Milestones

    Playing with toys or objects according to their intended function.

    AAC-Augmentative and Alternative Communication Devices

    AAC-Augmentative and Alternative Communication Devices

    AAC-Augmentative and Alternative Communication Devices

    Specific type of assistive technology that promotes independence, expands communication and increases social interactions for people with Autism.

    Developmental Delay

    ABA-Applied Behavioral Analysis

    AAC-Augmentative and Alternative Communication Devices

     A child who has not gained the developmental skills expected of him or her, compared to others of the same age. Delays may occur in the areas of motor function, speech and language, cognitive, play, and social skills. 

    ID-Intellectual Disability

    ABA-Applied Behavioral Analysis

    ABA-Applied Behavioral Analysis

     Once called mental retardation, is characterized by below-average intelligence or mental ability and a lack of skills necessary for day-to-day living. People with ID can and do learn new skills, but they learn them more slowly. 

    ABA-Applied Behavioral Analysis

    ABA-Applied Behavioral Analysis

    ABA-Applied Behavioral Analysis

     Applied behavioral analysis (ABA) is a type of therapy that can improve social, communication, and learning skills through positive reinforcement. Many experts consider ABA to be the gold-standard treatment for children with autism spectrum disorder (ASD) or other developmental conditions.

    FAPE-Free Appropriate Public Education

    FAPE-Free Appropriate Public Education

    FAPE-Free Appropriate Public Education

     An educational entitlement of all students in the United States, guaranteed by the Rehabilitation Act of 1973 and the Individuals with Disabilities Education Act (IDEA). 

    Neurodiversity

    FAPE-Free Appropriate Public Education

    FAPE-Free Appropriate Public Education

    The best possible definition (and controversy in the Autism community) IMO is found in this article in Scientific American. (Medical vs Neurodiversity Model)

    OT-Occupational Therapy

    ST-Speech Therapy (SLP-Speech Language Pathologist)

    ST-Speech Therapy (SLP-Speech Language Pathologist)

     The use of assessment and intervention to develop, recover, or maintain the meaningful activities, or occupations, of individuals, groups, or communities. It is an allied health profession performed by occupational therapists and occupational therapy assistants (OTA). 

    ST-Speech Therapy (SLP-Speech Language Pathologist)

    ST-Speech Therapy (SLP-Speech Language Pathologist)

    ST-Speech Therapy (SLP-Speech Language Pathologist)

     Speech-language therapy addresses challenges with language and communication. It can help people with autism improve their verbal, nonverbal, and social communication. The overall goal is to help the person communicate in more useful and functional ways. 

    Respite

    ST-Speech Therapy (SLP-Speech Language Pathologist)

    Respite

     Short term programs usually provide relief for a few hours or a day to allow the caregivers to run errands, attend to other family needs, or simply have a rest. Some families use a respite worker to care for their child with special needs in the home to give them time to focus on their other children. 

    AJ's Café: Autistic Java™

    What is AJ's Café brewing up this week? Stay tuned to find out!

    Coming Soon...

    Welcome To SPEACC™


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